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by Olga Holland Jessica Kingsley Publishers, 2002 Review by Kristin Nelson, M.A. on Sep 1st 2004
The title of this book is derived
from the author's son's deep and enduring interest in dragons – the intense
sort of interest that is a hallmark of autism. Billy loves dragons and
understands much of his world through a framework of dragonlore. His mother
takes advantage of that interest to help him overcome his limitations and
obstacles. The book is an explication of the strategies she uses and the
inspirations behind them. It is also the story of her developing relationship
and understanding of her son. Anyone who has a child with autism will instantly
empathize with this family's plight. Anyone who doesn't might want to read it
to gain some insight.
Holland describes the many
strategies she has used to help her son deal with his challenges. These are
not revolutionary strategies and for the most part they can be picked up in the
educational or psychological literature. But one instinctively roots for this
mom as she learns through trial and error what helps her son. All children with
autism are unique individuals with different strengths and weaknesses, phobias
and talents. What worked for Billy may or may not work for another child with
autism, but what is important about this story is the theme of "try and
try again" until something works. And because children with autism are so
different, parents and caregivers must be willing to be creative and look
outside conventional channels for ideas and support. This mother epitomizes
that attitude. Some may criticize her strategies as being unavailable to those
of average means – for instance she moves her family across the country from
New York to San Diego because Billy benefits from living in a climate is which
he has the opportunity to run around outside all year. Most people cannot
accommodate their children's needs to quite that extent, but the fact that she
realized what was important for him and found a way to address that need is the
real lesson in the story. People looking for support in their own searches to
help their children will find encouragement in this book.
One refreshing aspect of this book
is that it is not another fantastic story about how a parent "cured"
her son's autism. At the end of the book Billy remains a child with autism who
has made substantial progress but who continues to face daily challenges. No
miracle cure or secret trick is touted. Parents and caregivers are not asked
to suspend their disbelief or encouraged to chase a holy grail. This may be a
relief to parents and others who are tired of reading about and chasing after
pipe dreams.
While there is much to be said in
favor of this book, there is also one serious concern – the book misrepresents
itself both in its title and advertising. Contrary to one statement on the back
cover, clearly written by a publicist, at no point does the author claim to
have found her son's autism to be a "blessing." She has done her best
to address his problems and help him integrate with the rest of the world, but
given the difficulties she and her family faced there is every indication that
she would have preferred her son not be afflicted with this disorder. In the
same way, the book's subtitle is overstated. I was never able to track down an
instance in which Holland claimed that autism was a source of wisdom. Her son's
autism certainly inspired many creative thoughts and she gained wisdom that
helped her address his needs, but the implied promise of identifying some
greater meaning in or through autism was never realized nor seriously
attempted.
This book is a decent chronicle
about life with a child with autism. To help others gain insight or to find
encouragement for your own struggle, it is worth a read. As a guide to
interventions and strategies, it is hit-or-miss depending on how well a given
child resembles the child in the book. And as a philosophical treatment of the
"wisdom" found in autism, it is useless.
© 2004 Kristin
Nelson
Kristin
Nelson, M.A., is an assistant professor and medical ethicist at
Rush-Presbyterian-St. Luke's Medical Center & Rush University in Chicago. She is also the mother of four-year-old twins on the
autism spectrum. |
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